Milk Protein allergy?

(18 posts)(12 voices)
  1. Does anyone have experience with this that could give me a heads up as to what to expect...

    I have twin boys who are 6 mos old - and one has a milk protein allergy (or at least, we believe he does). We have been struggling for months thinking he had reflux as he was constantly vomiting and crying. We tried all the meds and were getting no relief - until one doc suggested trying eliminating milk and putting him on Neocate formula. The change has been AMAZING. We actually have a pleasant, calm little man with hardly any more vomiting.

    We mixed up the boys bottles last week and there was hell to pay for the following 2 days - so we are trying to be extra careful. Hard with twins!

    Question is do most kids grow out of this? Or will we be avoiding milk for a long time to come? What a pain that will be - but if it keeps everyone happy and healthy will do so.

  2. By 2 we could start giving our DD regular milk...but she is still sensitive to it.

  3. Hi g - my DS had this when we brought him home from Guatemala, at just under 4 months old. He was on regular formula and couldn't poop unless you gave him prune juice, poor man.

    Ped. switched him to Nutramigen, and like you say, instant relief, happy little tot. We adopted a girl at the same time, so to avoid confusing bottles, we put a blue \"ponytail holder\" or rubber band around our boy's bottle.

    anyhoo - at 6 months, ped. said to start phasing out the nutramigen and we mixed it with regular formula, first 75% nutramigen 25% regular (target brand), then 50/50, then 25/75, and then all was well.

    I think every tot is different, but I believe my ped. said that most kids do outgrow it.

    When our son was 12 months, he began getting whole milk, and hasn't had any problems since (he's 4 now and drinks skim milk).

    Hope that helps,
    erica

  4. Two of my sons had a milk soy protein intolerance and were on Neocate. It is great stuff!

    With both of them we did a dairy trial at 9 months and they both failed (instant vomiting, diarrhea and rash). We tried again at 12 months and they were fine! Went straight to wholes cows milk at 12 months and had no issues at all.

    HTH!

    Jamie

  5. both my boys had a milk protein allergy from 2 weeks old. we put them on nutramigen. at about 12 months, we started putting 1/4 milk w/ 3/4 nutramigen and then slowly weaned them onto whole milk with no problems. They are 3.5 now and their favorite drink is MILK! =)

    FYI - if you can have your doc write a note stating the medical necessity of the special formula, your insurance may cover the cost. They covered the entire 12 months of nutramigen for us with no copayment. Otherwise it would have cost us $900 per MONTH. UGH!!

    Good luck!

  6. DS was on Hypoallergenic Alimentum until he was 6 months, then we SLOWLY weaned to a lactose free Similac Sensitive (lactose free but milk based). We had to wean super slowly. I tried going to the regular gentle formula and DISASTER.
    After weaning to lactose free he did well.

    Now, at 8.5 months, he is FINALLY on regular formula and is doing very well. Our ped said they almost always grow out of it- but at different rates

  7. DD was on Nutramigen for suspected cow's milk intolerance/allergy. She was able to drink regular milk by the time she was a little over a year old.

    Our Nutramigen was covered by the government, like Cutesydoo said. DD was a preemie and they covered it at 100%.

    To avoid mix ups, we put the twins' bottles in different plastic square tupperwares (tupperware was filled with warm water to warm up the formula) - each twin has his/her own colour of tupperware and their name written in a sharpie on it. Love the idea of a ponytail holder around the bottle!

  8. Just wanted to add that you can also put nail polish on one bottle to avoid confusion...it doesn't come off when washed.

  9. anyone..... what is the difference between Neocate and Nutramigen? Same stuff just different brands?

    (warning BFing mentioned)
    sannino - sorry you are dealing with this. My DS is 3 months old and I can not tell if I am dealing with this or reflux but his pain/screaming is just heartwrenching. I gave up dairy a week ago and have seen no improvement. I had him start meds (Pepcid on Monday and actually things are worse. I have no idea what to do next. So glad to hear you had success with Neocate. I tried a little of the nutramigen with DS#1 but he outright refused to drink it so I have been hesitating giving it to DS#2. If my ped ever calls me back I will ask if that might work for us. Thanks for posting - sorry you are dealing with it but at least it is good to hear what steps others are taking that help. For what it is worth with DS#1 giving up dairy for me was what did the trick. I BFed till he was 9.5 months and when we switched to formula we went to a cow protein one (mixing with EBM) and he had no isues and also went to whole milk just fine at 12 months so they do outgrow it!!

  10. cricket, just an fyi- all those hypoallergenics (alimentum, nutrimigens, etc) are nasty tasting at first. My son refused as well. I ended up putting a tablespoon of simple syrup in each bottle to get him used to it. Worked like a charm. I gently eased up on it and after about 3 days, he drank it wonderfully with no additives. I hope you don't have to do it, but it works great if you do.
    For me, my son's allergies were such that I would have had to give up ALL forms of dairy- no hidden dairy like bread and stuff made with dairy. That just wasn't okay with me. I am not wired to live that way. My son never thrived until I put him on the formula.
    So I guess I\"m just trying to say that while I know lots of people will do anything to keep the baby on the breast and its works great for them- its perfectly okay to admit defeat and move on. I did and never looked back.
    Now I am pg again and I have no problem looking anybody in the eye and admitting I have zero intentions of breast feeding this new baby. not even for a minute.

  11. \"Neocate is described on the label as:

    Hypoallergenic: the formula is less likely to cause an allergic reaction.

    Nutritionally complete: all of the essential nutrients needed to grow are supplied by the formula when consumed in adequate amounts.

    Elemental: ingredients are broken down to their simplest and purest form so they are easier for the body to process and digest.

    Amino acid-based: Amino acids are the non-allergenic building blocks for all protein.

    Dairy-Free Manufacturing: Neocate is manufactured in a dairy-free environment, providing a safe and effective formula for individuals with dairy allergies.\"

    It used to be prescription only. It is available over the counter now, but is special order through your pharmacy or direct from the company.

    orderneocate.com/p-20-neocate-infant-dha-ara.aspx

    Nutramigen and Alimentum are still milk protein based, but the proteins have been hydrolyzed (broken down).

  12. I also have twin boys and only one has a milk protein allergy. He also has a soy protein allergy. At 16 months he is still on Elecare (same type of formula as Neocate). We did try Nutramigen first but he had the same reactions. He also does have reflux as well and is on Prevacid. Our GI doctor said most kids will outgrow these allergies between 2 - 5. How severe is you ds's allergy? Can he have things that contain forms of dairy? That is the hardest part for us, he can't eat anything that contains any form of dairy or soy. We just did a trial if reintroducing foods that contain dairy and the throwing up/screaming started again. We also did the mix up of bottles by accident before and felt so bad at the reaction he had. Anyway, if you have any specific questions feel free to PM me, ds was diagnosed 8 months ago after an endoscopy & sigmoidoscopy.

    Meg

  13. Cricket - it took almost three full weeks after cutting out all dairy & soy from my diet to see an improvement in my ds. I was able to successfully bf him until a year but it was tough...I had to cut everything out! At 11 months we started introducing the Elecare since we knew he needed to be on formula or bf past 1. Due to poor weight gain at a year I was encouraged to switch him to all Elecare (it is nasty stuff but he got used to it). Like a pp said don't beat yourself up if you decide to go to all formula. It was really hard to eliminate all forms of dairy/soy. If I had to do it all over again I am not sure I would have continued to bf. I had some sick twisted feeling of guilt since my twins were born at 32 weeks and kind of felt I owed this to him.

  14. DS had a milk protein intolerance. He was on Nutramigen until 9 months old (we were lucky - he was part of a study and they paid) - at 9 months, we slowly mixed the Nutramigen w/Carnation Good Start - first 1/4 Good Start, 3/4 Nutramigen - did this over the course of a month so slowly - by 10months he was on Good Start and had no problems. Until recently, milk was his favourite drink and never reacted again after the initial few weeks of h e l l that we went through when he was first dx at about 5 weeks.

    Nancy

  15. I have twin boys too and one of them has a variety of allergies -- milk, soy, wheat, egg, peanut (we had him tested via both the skin tests and the blood tests) He is 14.5 months old. Once I weaned him at around 10 months we started to use the Nurtamigen. The allergist suggested we keep him on this for awhile to supplement his diet of solids. He gets about 12 ounces of this and then we give him things like fortified --with calcium and vitamin d--rice milk (vanilla -- I also use this to mix with his oatmeal and he loves it in his rice chex) and oj with calcium. He loves coconut yogurt, which has a lot of calcium in it. So as you do begin to introduce solids to him, there's ways to work around the dairy allergy. As long as he's not allegic to soy, you can use soy yogurt and milk as well. From what I've read, many babies that are allergic to milk are often allergic to soy, so you might want to watch for any reactions if you try the soy.

    ps. cricket: I remember reading somewhere it can take up to 3 weeks to get dairy out of the system. You might also consider it might be more than just dairy. I remember getting really discouraged. My instinct told me my son was allergic to dairy early on and I couldn't understand why cutting it out didn't take care of all the symptoms (though he did improve) -- then we had him tested and found out it was a number of things. I then cut all these out and he became a whole new baby! Hope with another week or so, things improve. But if you do decide to stop bfing, please don't stress about it. Allergies are stressful and you need to make sure you eat well so you have the energy to be a mom. You've already given your baby a wonderful start.

  16. Wow! Thanks for all the input - much appreciated... Especially like the nail polish on the bottle tip to avoid any confusion - will definitely be doing that today.

    I am going to contact my doc and see if she will write a letter to my insurance company and keep my fingers crossed. I've been ordering the Neocate online direct from the manufacturer - and even with a small discount - this stuff costs a fortune!

    Glad to know most of your kids have outgrown the allergy - will be hoping for the same.

    G

  17. G - to get our Elecare covered our GI doc had to actually write a prescription for a certain amount of cans per month as well as the diagnosis codes. We also have to order it from an in network durable medical equipment supplier. I had no idea these places had a whole nutrition division.

  18. hmph. our ped refused to write the diagnosis code required by my insurance company. Apparently my insurance company would only pay if it were some kind of disease instead of an allergy. I was bummed.

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